Date
Breast Cancer Ribbon

Hair growth and energy dips

posted by:
Joanne Wallen
and viewed 38 times

My hair is growing back. I’m not exactly tripping over it yet but it is definitely on its way. Martin reckoned there was one strand that must have been an inch long. He calls me “Tufty” now! Prior to this he was wandering round saying “My precious” and imitating Golem in Lord of the Rings!! Well, humour is essential in these situations! In the light you can see lots of little strands of hair sticking up. So Olivia was right after all. My hair is growing “up” again! It will be interesting to see how it grows back. I’ve heard lots of stories of people with straight hair whose hair comes back curly. At that rate mine will be Afro!

I’m feeling fine now but I do seem to have dips in my energy levels. My surgeon, Mr Carpenter, summed it up the other day. He said: “You may look like you haven’t had anything done to you but you’ve been through a lot. Give yourself time.” So I am. Some days though I wonder whether I’m feeling tired because I’m doing less. There is a point at which your whole body and mind just slows down. Still, it’s only three and a half weeks since I had the operation and I had 16 weeks of chemotherapy before that so, I’m doing well considering!

On Thursday I met Franny for coffee at the Docklands Museum. I thought she could use the opportunity to talk to the museum about stocking her Step Outside guides. There was good news and bad news. The good news was that the book buyer was in for a meeting and made time to come down and see us. The bad news was that he was the same person who buys for the Museum of London and he had already turned Franny down. Despite her ever more confident sales pitch, boosted by the fact that lots of people love the guides and several museum shops are already stocking them, he was not going to be persuaded. “Never mind Franny”, I told her, “someone turned the Beatles down too!”

On Friday, Martin was still next to me in bed at 9am. He had, it seemed, decided to have another day off with me. He hasn’t said much recently but I know he is still worrying about me all the time. We decided to take mum and dad out for lunch, and mum sounded delighted at the idea. But the best laid plans were nearly scuppered. I’d noticed that a small area of skin around my scar was looking red and a tiny bit of scar looked open. I phoned the hospital and they told me to phone my surgeon’s secretary. At about 12 noon the hospital phoned me back to say that Mr Carpenter was in surgery but would see me when he came out. Could I get to the London Clinic for about 2.15?

I didn’t want to put mum and dad off, so we went in the taxi to pick them up and take them for a little outing to Harley Street! The four of us piled up to the fifth floor of the London Clinic, where I was treated like returning royalty. We had to sit and wait until Mr Carpenter finished in surgery but were brought tea, coffee and biscuits while we waited. Fifteen minutes later Mr C arrived and took me into an examination room. He wasn’t worried by the redness. It was inflamed but not infected, he said. Nonetheless he prescribed some antibiotics as a precaution. He also drained some more fluid from the lump under my arm, which was a relief.

By the time we left Harley Street it was 2.45. We didn’t want to get caught up in Friday rush hour traffic so decided to head back to Redbridge, where mum and dad live, and to have a late lunch at their local Beefeater, the Red House. It might not be Martin or my favourite type of place but I have to admit the food and service was good and, with the special daytime menu, it was very reasonably priced too. Mum and dad are not hard to please. They’d enjoyed their taxi ride “up west”! They’d enjoyed coming back through Islington, Dalston and Hackney and hence down “memory lane” and they’d enjoyed spending time with me.

We dropped them home and drove back to Limehouse, where we parked the cab and went straight to the Grapes to meet Sue and Tommy. They’d kindly offered to come over to see us as we haven’t been down to Ramsgate at the weekend for a few weeks and weren’t going this weekend either. We spent a pleasant couple of hours chatting and left at around 7.30.

Saturday was partially sunny but breezy. We managed to sit in the garden for a while. It was lovely while the sun was out but chilly when it went behind the clouds. Still, it was good to be out there again. After a walk to Lidl to shop for dinner and a light lunch we popped round to friend Jill’s to talk about going down to her cottage in Padstow in a couple of weeks for a break. We then took her down to the Grapes for a little while.

Sunday was yet another lazy day. Again we managed some time in the garden. We both had a little siesta mid afternoon and I was feeling quite tired when we got up. Fortunately, we decided to walk down to Canary Wharf to go to Waitrose. The walk did me a lot of good and proved that it’s important to keep moving and active.

I’m definitely starting to miss the gym. There are quite a few Pilates-type exercises that I have no problem doing even now. But my problem at the moment is motivation. For the next few weeks I will need to navigate my way through a middle path between doing too much and not doing enough.

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Needing a bit of a rest!

posted by:
Joanne Wallen
and viewed 55 times

I came to a grinding halt yesterday. There was no major, dramatic reason for this. I’d felt pretty tired on Tuesday night and had a reasonably early night. I suppose I’d had a fairly busy few days, and yesterday I had no plans.

I knew there was something up when I didn’t get out of bed after BBC Breakfast at 9.15. Instead of switching the TV to radio and getting up as has become my daily ritual, I actually sat and watched Heir Hunters!! I considered writing my blog but couldn’t muster the energy. After Heir Hunters (well it can be quite interesting!!!) I managed to get up and run a bath. I put some washing on, although I still have to be extra careful not to lift anything heavy. I’ve developed my kicking skills to kick the washing basket along the floor to the machine!

I had a long bath, reading Jo Nesbo’s The Devil’s Star, the final book in a very readable trilogy, and by the time I’d got out of the bath and dressed it was not far off midday. I had some admin to tackle. I took my paperwork into the lounge, put more daytime TV on and worked my way through booking Martin’s cab in for it’s annual check, paying bills and shredding rubbish. I felt better for doing it.

After a salad lunch I thought I might walk down to Canary Wharf to go to the post office and get some air. But as time went on I realised that what I needed was simply to allow myself to do nothing. I’d remarked to Dena the other day that I wondered when I was supposed to have time to read books and watch DVDs? I’ve had very few days through my chemo treatment and even since my operation just under three weeks ago when I’ve simply sat at home and done nothing.

So I finally gave in and allowed myself to just chill. I watched a wonderful half hour monologue with Alison Steadman on iPlayer ( A Civil Arrangement), and an episode of Secrets and Words that I’d recorded some time ago. I wasn’t excessively tired, I wasn’t depressed, I just needed a rest.

I’m still getting quite sore and the most uncomfortable thing is that I’m still getting quite a build up of fluid under my arm, a seroma, which is a common after effect of having lymph nodes removed. My surgeon, Robert Carpenter, has drained it twice now but it is still building up again. Eventually my body will just learn to cope with it but for now, it is a bit uncomfortable.

I went to see Mr Carpenter on Tuesday and apart from draining off a load of fluid he was happy with the way I’m healing. I have an appointment with him for the next two Tuesdays. I went straight from seeing him to the LOC a few doors down to have a dose of Herceptin. Although it takes only 30 minutes for the Herceptin to go through, I was there in total for more than two hours. It is not an unpleasant experience. I had a sandwich and coffee and sat and read my book. This will happen every three weeks for the next year.

When I left Harley Street I had a little browse in the shops in Oxford Street and had to go to M&S for some more of their special post-op bras. I got back to Limehouse at 5.30 and met Martin in the Grapes for a drink. John and Ross were in there and it felt like life was getting back to some form of normality. I guess it had been a long day though and not surprising that I needed a rest yesterday.

Another reason for needing a rest might have been the lovely visit we had on Sunday and Monday from Matthew and Claire and Olivia. They arrived at 1.30 and we had some lunch. We then gave Mat and Claire a chance to relax while we took Olivia out for a couple of hours. She’d already begged me to take her on her own and leave mum and dad behind! Apparently she was disappointed that they were gate-crashing her sleepover in London! Four going on 14!

We took her to the park, where she went on everything available and was disappointed that the slide wasn’t longer and faster. Then we went down to Canary Wharf, thinking there might be some entertainment for children as it was Bank Holiday weekend. There wasn’t, but despite having lunch and an ice-cream, madam managed to convince us she was really hungry and needed a jam doughnut!

In the evening we all had dinner. Olivia had decided before she arrived that she wanted to sleep in our room. So we put a mattress down on the floor next to my side of the bed and after I’d read her two of her books and she’d said goodnight to all, she fell deeply asleep there. Until 6.15am that is. How is it that children wake up so full of energy? I got up to go the the loo and by the time I came back my side of the bed was crammed full. There was a giant teddy bear that I’d bought years ago from Hamleys and keep here for the children, four little teddies and Olivia! Granddad’s attempts to pretend he was still asleep failed miserably. Olivia deigned to move over and allow me back into bed, but not for long. The ‘sleeping’ granddad suddenly became the Gruffalo and Olivia and I had to run and take cover in her bed.

I then had to get up and go into the lounge with her, where she was ready for Weetabix and toast for breakfast. Mat and Claire wanted to avoid the Bank Holiday traffic so they set off home at around 10am. Martin and I looked at each other. We were bathed, dressed, had eaten breakfast and played Gruffalos, and it was only 10.30. We sat and read the papers, then Martin put a coat of paint on the front door and I decided I’d just nip into bed for an hour! No sooner had I got up than Martin also decided to have an afternoon snooze! To be fair to Olivia the weather was grey, cold and wet and we have had a pretty tough few weeks. We didn’t go out at all on Monday and I had another battery charge on Wednesday.

It was clearly the right thing to do and today I’m feeling fine again. Have switched off Heir Hunters, written my blog and am off to meet my friend Fran for a coffee. Onwards and upwards!

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Dad out of hospital and all’s well in my world

posted by:
Joanne Wallen
and viewed 97 times

Thankfully, dad finally got out of hospital yesterday! His test showed something that wasn’t quite normal so they did a CT scan but they still won’t know if there’s anything to worry about until the results of the biopsy are in. Mum is still getting over whatever bug she picked up, but insisted on being taken to the hospital yesterday and waited until they released him late afternoon.

Lou and Bev took her there but then finally escaped to the sanctuary of their favourite place, the casino at Westfield, for the rest of the afternoon! They really needed a break and the casino is their favourite pastime.

Apart from recovering from a major operation I’m fine. Friends continue to rally round, which is wonderful. On Thursday, Myra came up from Ramsgate for the day with Ian, who had some work up here. She came over to Limehouse and we met for lunch at Cafe Verdi in Narrow Street. It occurred to me that it was probably the first time in the 18-odd years that we’ve known each other that it had ever been just the two of us. Naturally that was hardly a problem. We nattered away happily for a couple of hours over a bottle of water and a large, tasty plate of salad.

Ian agreed to pick Myra up at 3pm. Meanwhile Dena was heading over to see me following her lunch with a friend in town. Dena arrived at the station just as Myra and I were strolling past, so after
a brief chat Myra took her leave and went to meet Ian and Dena and I went home. We passed a pleasant 90 minutes just chatting, as only women can. Then Dena was ready to make her way home and Martin arrived home. He had decided not to work this week in order to be with me in my first week out of hospital, but took the opportunity to do a day’s work on Thursday as I was seeing the girls. I walked down with Dena and met Martin and we headed first to the polling booths to vote for the London Mayor and then to the Grapes for an early evening drink.

Our week together consisted of lazy mornings, a trip to B&Q to buy plants, a walk to Canary Wharf one day, a few hours in the garden on Monday afternoon before the weather turned wintry later in the week and a walk up to St Katharine’s Dock and back yesterday. Not the sort of exciting week I would usually hope for on our time off together but at this time and in these circumstances it has all been lovely, quality time. I also received a lovely bouquet of flowers from old family friends Kathy and Aubrey, Stacey and Geoff and a wonderful lily plant from new friends Linda and Andrew.

Today, after the usual dose of Saturday kitchen we went round unannounced to see mum and dad. The reason for not announcing our intention to visit was that I knew mum would try to discourage me in case she was still contagious. But it had been nine days since I’d seen them and I couldn’t keep away forever. Although it was after midday when we arrived they were both still in their dressing gowns, which told me they were not yet back on form. Nonetheless, considering what they’ve both been through in the past week and indeed the past few months with worrying about me, they were doing ok. You could just see the relief to have dad home. Lou popped round to see us too and despite everything we were all able to enjoy a good giggle as usual.

By the time we’d driven home from there and been to Waitrose for tonight’s and tomorrow’s dinners, I must admit I felt a little tired and ready to go home for a rest. We’ll have a quiet night in and recharge batteries (yes, the FA Cup has been on and no, I haven’t really been watching it, sorry, I just don’t care!!!!). The batteries will need recharging for tomorrow, when son Matthew and daughter-in-law Claire are coming up with four year-old Olivia and staying the night. Nephew Sam has also said he’ll pop round at lunchtime to see us all. It will be lovely to see them. But then, with the possible exception of this grey, cold, early May weather, everything is lovely at the moment, especially all the wonderful people in my life!

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Our week horribilis — it’s all good then!!

posted by:
Joanne Wallen
and viewed 813 times

I’m continuing to do well. We went to see my surgeon yesterday. He had to drain some fluid from where the last drain had been, which is to be expected, but other than that he said I was healing very well. He removed the steri strip dressings and said I could now soak in a bath, wonderful!

The analysis from the operation showed cancer in five of the lymph nodes. This was not a huge surprise. We knew already that it was in one or two. As a result he does want me to have some radiotherapy. We know I can’t have too much but I will now go to see Dr Nick Plowman, a radiotherapy specialist, again and he will have the final say on how much. It won’t be for a few weeks until all this settles down. Following radiotherapy I will have to wait at least six months for the second reconstruction operation. Although a few weeks ago I might have been disappointed about that, I am now pleased to have the time to fully recover and have a break between operations. Also, I don’t want to have to be in hospital in central London any time during the Olympics! Best to let London return to normal first! I’ve already re-written the words to that old song though, “All I want for Christmas is my two …………”!!

So all’s going to plan with me. But for my family this has been our week “horribilis”. Last Thursday early morning, while I was still in hospital, mum called an ambulance for dad. He’d been bleeding from the back passage. They took him in to King George’s in Barley Lane, put him on a drip and started the process of getting him tested. Lou was left to phone me and break the good news. What could I do?

They initially thought it was an ulcer. He’s had one before so this seemed likely. They would give him a gastroscopy. When? Oh, not till Saturday. So he was supposed to remain on a drip and not eating from early Thursday until some time on Saturday?

Lou went to work on them. She read the riot act and explained the extenuating circumstances. I was still in hospital etc etc. She can be scary when she gets going. Result, he had the gastroscopy on Friday. Unfortunately, it showed that it wasn’t an ulcer.

While in there he had some pains in his chest, so suddenly they were more worried about that — dad had a heart bypass about 25 years ago and has had some angina since. So the next plan was to do a heart scan. But that wasn’t going to be until Monday! All this time, I’ve come home from hospital but am banned from going anywhere near dad in hospital in case I catch anything! I did check with my nurses and they agreed with my family. So the burden all fell on Lou and Bev.

One minute dad was waiting around on Sunday getting bored, and the next he had vomiting and diarrhoea! Dangerous place, hospitals!! He was ill all Sunday night and Monday, so much so that they couldn’t do the heart scan. On Monday evening they finally moved him into a room on his own and put him back on a drip. Needless to say mum had been at the hospital all day. She was pretty concerned about him.

Luckily, having left him looking ill in bed on Monday evening, she found him standing out by the nurses station when she got there on Tuesday morning. He was on the mend and finally had a colonoscopy booked for Thursday to look at what caused the problem that brought him in there in the first place. So all was looking ok again, until this morning, when Lou phoned to tell me that, guess what? mum had got it and had been up vomiting all night! Not terribly surprising but awful, especially as she was on her own! She stubbornly told us she was ok but my biggest concern was that she would dehydrate. She’s not the best at drinking fluids at the best of times and she wasn’t really up to going downstairs to get herself drinks.

There was nothing for it but for poor Lou to leave work and go round to look after mum. She’s done her best to get fluids down her but a cup of tea didn’t stay in situ for long! I’ve just read an article that said there is a stomach bug, Norwalk, sweeping the country and its symptoms are just what mum has!

And just when you thought things couldn’t get any worse, Lou’s ex-girlfriend Linda, who now lives in Scarborough but was down last week to look after Lou’s dog while Lou visited me, found out last Wednesday that she had a suspected tumour in her lung and today has had lung cancer confirmed!

Lou is holding it together at the moment but I’m not sure how! Thank goodness she has so much support from the wonderful Bev! We are trying to keep ourselves sane by quoting Hugh Bonneville’s character Ian in the wonderful spoof TV programme Twenty Twelve, “So, it’s all good then”!

But this week the expression that best seems to fit our family is, “It never rains but it pours”!!

UPDATE!!!!! Mum has just been taken to hospital in an ambulance. She told Lou that her vomit was black. Lou phoned the GP and she said it sounded like liver and to get her to the hospital. The ambulance driver said she’d be surprised if it was liver but they’d have to take her in for checks!!! The ONLY small mercy is that they’re taking her to the same hospital that dad’s in!!!! Aaaaagh”

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The homecoming

posted by:
Joanne Wallen
and viewed 62 times

When my surgeon, Mr Carpenter, came round at 7.15 on Friday morning and said the last drain could come out and I could go home, I was very pleased indeed. He’d always said I’d be in for seven to ten days and Friday would have been the eighth day, so this was as early as I could have expected. The nurses said I’d been a model patient and touchingly said they’d miss me.

I had forgotten, since my last major operation eight years ago, just how wonderful and important nurses are. You go into hospital thinking it’s going to be a terrifying experience and these wonderful people are there from the moment you arrive, all through the night and any time you need them to reassure you, treat you, listen to you and make you feel as secure as your mother did when you were a child.

I know I was spoiled in this respect because I was in a private hospital as a private patient. I only hope though that stories about poor treatment and care in the NHS are the minority because I’m sure that few people would go into nursing if they didn’t care. It certainly wouldn’t be for the glamour or the money!!! I think every NHS boss should spend a week watching the nurses in a private hospital and then a week on one of their own wards and then do everything in their power to ensure the same standards of care in each. And don’t tell me they couldn’t find the money. I’ll bet it would cost a pittance to have enough properly trained nurses compared to the amount of money wasted in layers of bureaucracy and inefficiency in every layer of NHS management! That said, my dad is currently in King George’s hospital (but that’s another story) and mum says he’s being treated very well.

I needed to get home for a rest really! On Tuesday, mum and dad came up to see me and friends Sue and Franny came too. Needless to say they were all, at one point, there at the same time. While they were all in my room the nurse came to take out another drain. I asked my visitors if they would mind stepping out for a few minutes. Although it took only a second to get the drain out, the preparation took about ten minutes. It was like a Japanese tea ceremony in its precision, all in aid of hygiene and keeping everything sterile. Even a pair of scissors to cut a piece of gauze for the dressing came out of a sealed pack. It struck me why the NHS has had such a problem with infection control. I doubt a nurse would ever be allowed the time mine took to prepare for this little procedure!

Step Outside

By the time my visitors were called back in, business had been transacted between Franny and Sue! Franny and her sister-in-law Margie have just launched the first two in a series of lovely books or guides for families to discover hidden gems of London which, crucially do not cost anything to visit. I may be biased but the Step Outside Guides really are lovely little books illustrated by Sam, one of Franny’s four talented children, and Franny has done a great job in a very short space of time of getting bookshops and museums and galleries to stock them. Not known for being the salesman among us, my old school friend Franny is so passionate about her creation that she managed to sell Sue two books just standing around in my hospital corridor!!

By now a feature of the day was the bemused cleaner poking her head round the door, staring at the crammed room and deciding she’d come back later. Eventually she got clever and snuck in around 10am before the visitors arrived!

Mum and dad came again on Wednesday as did my dear friend Dena, bringing yet more gifts including a lovely body oil and foot cream. I tried to persuade mum and dad that it wasn’t necessary to trek up on the tube each day but that was of course futile. I’m still their child! Sadly, events rather overtook us. Mum had planned to leave dad at home on Thursday and come up with Lou. But on Thursday morning Lou called me to say dad had been taken into hospital. He’d had a bleed and they were keeping him in pending tests goodness knows when. Mum told Lou to tell me she couldn’t come because she had a cold!! Bless, she still thinks I’m five!!

So Lou came on her own. It was day six and I was fed up of sitting around in nightwear so I got dressed and we took the bold step of going across the road to another part of the London Clinic which has a cafe on the ground floor. It was great to get a change of scene and I felt fine. We’d even managed to find a window in what had been an awful windy and rainy week when the sun was out. We took the opportunity to have a short walk down Devonshire Place. My first taste of freedom. In most places it would be odd to see people walking around with drain bottles in little bags but not in Devonshire Place/Harley Street, apparently!

Thursday was the only day when visitors did not all converge at the same time. Lou left at 4 and Martin arrived at 4.30. Martin left just after 6 and Sally, my old friend from university, arrived as he left. Sal spent a couple of hours with me which was very pleasant.

Going home

So I had not had time to get bored in hospital. Nonetheless I was ready to come home on Friday and would have been disappointed if I hadn’t been allowed out. By the time I’d had breakfast and a shower and had the last drain out there was suddenly a bit of a rush to get me out of the room. There was someone else coming in and they needed the room by noon.

Luckily, Martin arrived just as I was starting to pack my things. Thanks to my generous visitors I had considerably more to take out than I’d arrived with. As I said, all of my nurses had been lovely — day nurses Deidree and Helen were particular stars and night nurses Norma and the lovely Rose, who hated giving me my nightly anti-coagulant injection because she didn’t like hurting people! Luckily I knew I was being discharged before she came off shift so we were able to say goodbye. Helen Goh, the day nurse who I’d had caring for me on at least three days, gave me a big hug when I left and told me to look after myself. She also accompanied us down to the front door and helped carry a bag for us. You can’t teach that!

Luckily, Martin has been able to park the cab outside the hospital. As we drove home he asked if I’d be up to popping into Waitrose so he could buy dinner. I felt fine. We popped into the Cape next to Waitrose for a toast to my first day of freedom for a week. I had a cappuccino. Funny how what are usually everyday experiences can feel so good!

Then a quick spin round Waitrose where Martin bought some smoked haddock for dinner before home, sweet home! The flat looked so light and airy after a week in my hospital room and the simple sandwich lunch that Martin prepared tasted better than anything I’d eaten all week. We sat and chilled out for a while but then the sun came out and we decided to go for a little walk to pick up something from the cleaners and a parcel from the post office. It ws good to get some fresh air and to get my legs working properly. There is only so much exercise you can get walking up and down a hospital corridor!

Well, we were out, so was the sun and it was Friday late afternoon so it seemed rude not to pop into the Grapes for a quick drink. John and Ross, both of whom had tentatively asked if I might be up to receiving visitors at the weekend, we’re in there and didn’t seem too surprised to find me straight out of hospital and in the pub!! Even before my diagnosis I’d taken to drinking what these days is considered very small, 125ml, glasses of wine, and a 125ml glass of claret hit the spot nicely! Welcome home me!

We both really enjoyed our evening meal. Martin still cooked for himself a couple of times when I was in hospital but I know he was pleased to be cooking for the two of us again. For me it was nice to eat tasty food at a proper table and with Martin. After dinner it was business as usual. We watched a bit of Tv together and Martin went to bed before me. While we were watching telly I was thinking about my first night in bed at home with my newly disfigured body. “I think I’ll wear a pyjama top tonight”, I managed to say to Martin. He looked at me. “Don’t do that,” he said. He ws right of course. It would only mean putting off the moment. As it was, Martin was asleep by the time I got to bed. I crawled in beside him, carefully lying on my back as I had learned to do in hospital, and fell asleep.

In the morning, I was brought tea in bed, which often happens anyway, and we sat happily watching Saturday Kitchen in bed until 11.30. Whatever Martin thought when I finally got up and he saw me for the first time, I can only guess. As far as external appearances were concerned, you wouldn’t have known he’d noticed any change. He washed my back in the shallow bath I was able to take and changed a dressing for me. If we could both cope with that we could continue to cope with anything!!

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Coming to terms — a candid look at my new reality!

posted by:
Joanne Wallen
and viewed 69 times

Since I started writing this blog I have talked about my treatment plan openly. I knew virtually from day one that I would have chemotherapy to shrink the tumour and then a mastectomy, or rather a double mastectomy because of the risk to both breasts from the radiotherapy I’d had at 18 for Hodgkin’s Disease.

I’ve discussed my hair loss and posted photos of the new, bald me. I’ve said the words ‘operation’ and ‘mastectomy’. I’ve told people by phone, text, email and face to face what was going to happen to me. I didn’t have a problem with being open about it all, because I know so many people will either go through some or all of what I’m going through or know someone close who will have to go through it.

I’ve had the operation now and, five days on, I’m making great progress physically. But of all the operations I’ve had, this is the first that affects my external appearance and I knew that it would take a bit of coming to terms with. I’ve seen photos and knew what to expect but yesterday I looked in the mirror for the first time and the reality hit home. I’m sorry if this upsets you. You don’t have to read on. But this is reality, not just for me but for thousands of other women too.

When I saw a breast care nurse at UCH last week she warned me that this was the start of a process, not a finished product. For technical and medical reasons Mr Carpenter decided he could not reconstruct the left breast immediately. He has reconstructed the right breast, but even that has an implant that will be expanded gradually by injecting a saline fluid over about three or four weeks. On the left side, there is nothing. I won’t know until the analysis of tissue sent off after the op comes back whether I will have any radiotherapy or not. If I have any, it will delay the second reconstruction for six months to a year. If I don’t it could be done in three or four months.

Either way, there is an interim me to deal with. The way this is done is by wearing some sort of infill in a specially designed bra. I am so grateful to my friend Diana for pointing out to me before I came in here that Marks & Spencer does a range of post-surgery bras. I had a look at them a couple of weeks ago and was very pleased and relieved to see that they were really pretty and ordinary looking. After I saw the breast care nurse last week and asked her what size she thought I’d end up, I bought a couple of the bras from M&S, on the basis that I could always take them back if they were no good.

And then yesterday, one of the breast care nurses who works here at the London Clinic came to see me to talk bras. I’d already told her that I’d bought some, but she was determined to get me to try on a few from her “range”. I felt like I was dealing with a saleswoman rather than a nurse. Rather than let me try on the bras I’d bought first, she got me to try something in which I ended up looking like a 12 year-old in her first bra. Bear in mind that this was really the first time I’d looked in the mirror since the operation and imagine how I felt. She then left me standing there while she ran back to get a different size.

All I wanted to do was get this hideous thing off and try on the black, padded bra from M&S. I made that clear when she arrived. The minute I put it on I was overwhelmed with relief. I looked like a woman again. What was this nurse thinking? She sort of reluctantly agreed that I was right and that my bras were far better than hers. Was she on commission? I didn’t dare ask.

Martin arrived just as we were finishing what for me had been a fairly traumatic experience although with a sensitive nurse it shouldn’t have been! He picked up on my mood and this created a little bit of tension. It is inevitable that we will both have some issues as we come to terms with all this but we could have done without these being exacerbated by the so-called professionals.

I was determined that I was not going to deal with this particular nurse again. But she had to pop back today to bring me something I needed. She came after today’s visitors — mum and dad and Dena and Trevor — had gone but while Martin was here. Could she, while she was here, run through some post-op advice with me? she asked. Well, I needed to know what to look out for regarding any infection the the wounds and how to try to prevent problems once I’m sent home. So I agreed to talk to her.

As it turned out, I think she’d realised that I wasn’t all that happy with her yesterday. When she gave me the medical info she was once again a nurse doing her job as opposed to a dodgy lingerie saleswoman. There are more hurdles to get over yet as we all come to terms with this. But I’m starting to get my head round it now. Roll on the finished product!!

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Full house in room 517

posted by:
Joanne Wallen
and viewed 49 times

So here I am on planet hospital where the locals are smiley angels called nurses and we visitors sit around in weird hospital gowns with tubes sticking out of us and our usual sense of dignity left at the door!

I have continued to make good progress since amazing even myself on Friday by coming through my three-hour operation and being awake enough to talk to the nurses in recovery. Martin, mum, Lou and Bev were in my room when they brought me up from surgery and were clearly delighted to hear me laughing and joking straight away. There is nothing as fine as your first sip of water after surgery. I’d not been allowed to eat or drink from midnight Thursday so by 3pm Friday water tasted like nectar. And tea! bliss!

Despite being awake all afternoon and until late at night I didn’t sleep brilliantly. Hardly surprising. I had four drains coming out of me each with a plastic bottle on the end plus a saline drip and a line into a self-administered morphine drip. Added to that I am someone who only ever sleeps on my side, mainly my left side. And here I was having to sleep propped up and on my back. Then there was the two-hourly visits from the night nurse to check my blood pressure, temperature and oxygen levels. Still, I suppose I must have slept a bit. I used the morphine only once at about 3am. Not that I was in agony at all but I was starting to ache on one side and didn’t want to make sleep any harder. The nurses were surprised that I had not used more morphine. The night nurse told me that some women press it constantly. I don’t do drama!

Poor Martin, having brought me in at 8am on Friday, waited around while I was in surgery and stayed all day until gone 8pm, he got to the taxi and found the rear lights wouldn’t work! This meant he had to leave the cab on the rank and get the tube and DLR home. Just what he didn’t need!

So on Saturday he came in fairly early in the morning, stayed a couple of hours, took the cab home and came back. My mum and dad and Lou and Bev arrived by mini cab just after midday and had to be persuaded to call it back for 4 rather than 5 to give me at least a little rest. Still as I told my lovely nurse Deirdree when she wondered how I had so much energy without resting all day, love is better than rest!

Martin and I enjoyed a quiet few hours after they left just watching TV and being together. He left at 8 and I continued watching repeats of Doc Martin and some NCIS — anything to avoid The Voice or Britain’s Got Talent! despite the nurse’s concern about me getting too tired, my way of doing things paid off. By the time I settled down to sleep I was tired enough to get a good few hours of undisturbed sleep. I woke up around 3am and stayed awake for an hour or so but then fell asleep again, waking at 6.30 when the nurse came to do my obs. She brought me a cup of tea and then I dozed again until breakfast at 8.30.

Martin did not sleep so well and was up here by about 10, avoiding the marathon runners who would be pounding past our front door all day.

The beauty about private hospitals is that there are no set visiting hours. The problem with private hospitals is that there are no set visiting hours. For some reason, given the choice, all of your visitors seem to pick the same time to arrive! Don’t get me wrong, I love parties. But this room is not that huge and has only two chairs and a foot stool (three chairs if you count the plastic chair in the bathroom which we’ve already had to wheel out on a number of occasions).

So friends Jackie and Geoff said they’d drop in late Sunday morning on their way from home in Suffolk to get their grandson in Surrey. It was lovely to see them. While they were here, mum and dad arrived. Chairs were shuffled and somehow five visitors were accommodated. But just as we were in full flow there was a knock on the door and Tony walked in. This was a real busman’s holiday for him. Tony is a hospital theatre manager/surgeon’s assistant. There isn’t much he doesn’t know about surgery. He was going on holiday to Spain on Sunday evening yet still made the effort to come and see me on Sunday morning!

Full house

We’d hit full house though. The cleaner popped her head round the door and announced she’d return later. There wouldn’t have been an inch of floor space to clean! Mum and dad popped out for a while, then Jackie and Geoff left, then Tony went to finish packing.

Martin went out for a breath of air, a walk down Marylebone High Street and a peaceful pint. Mum and dad left at 4 and Martin asked if I was okay with him leaving about half an hour later. It’s not easy sitting cooped up all day and I need him fit, healthy and happy at the moment!

So after a pretty full on day, there I was alone for the evening. This was what prompted me to sit and watch Charlie and the Chocolate Factory! Well in fairness I don’t think I’ve ever seen it all through. I combined watching the film with reading the Sunday Times and having quite a long chat with my nurse before she went off duty for two days.

Then it was on to Vera at 8pm (very watchable) — and we’ve even met Brenda Blethyn as she lives in Ramsgate — followed by the highly compelling Homeland thanks to Channel 4 +1. By the time I switched the TV off at 11.30, I was definitely ready for sleep. Luckily, sleep was what I got. Apart from waking up briefly at 4am I slept till woken up for my morning observations at 6.30.

The night nurse, Norma, a sister, brought me a cup of tea. She, like all of the staff here, has been lovely. I lay comfortably watching breakfast TV and relaxing. By now I am able to get up and walk around on my own, which makes life easier.

Martin set off from home in the cab intending to work and pop in to see me whenever he could. Luck was on our side. His first fare took him to Regents Street, just round the corner, so he was here by the time my breakfast arrived at 8.30.

Martin stayed for half an hour or so then went off back to work. A little later he was called to the Lister Hospital to wait for some people and take them to, guess where? — here, the London Clinic. So he was back in here to pinch a few grapes and give me another hug.

Tufty

Yesterday I had a shallow bath. Today we went for a shower. You start to feel human after your first wash following surgery. There is not yet any hair to worry about washing but there are early signs of regrowth. Martin has now taken to calling me Tufty! There is some debate as to the colour of these few hairs. Martin reckons they are light. One of the nurses here told me that she recently had an Israeli patient with dark skin and dark hair whose hair grew back white after chemo! I must admit I hadn’t considered this. It would be quite a shock to the system but then I’m getting used to those!

Whatever colour it is, granddaughter Olivia, 4, will be intrigued. She has already asked how long before my hair grew up again? I had this scary image of it growing straight upwards! Then she wanted to know how many sleeps it would be before it grew back? I love the minds of young children!

I was showered and in my new pyjamas with the little cup cake design, sitting up in the armchair and starting this blog when my old school friends Diana and Alec turned up unexpectedly. I was delighted to see them. Diana had come straight from her own radiotherapy treatment. Very sweet of them. We just had enough time for a chat before mum and auntie Sheila arrived. And then Dena came. It was like a Wanstead High School reunion!

Again the cleaner came and went. Again the room was crammed. How lucky I am! Everyone was gone by 2.30, giving me a brief respite before the complimentary therapist arrived to give me a lovely aromatherapy massage to the legs and feet. Then the breast care nurse came to introduce herself and have a chat. Martin came back at around 5 and left at 6.30.

In between all the socialising, I had the second of four drains removed. I now have only two on the left, making it easier to walk around. I’ve done the length of the corridor and dutifully done my arm exercises. I am doing very well. I’m still likely to be in here for a few days, until the last drain is ready to come out. By then I’ll probably be heavier than when I arrived thanks to eating three meals a day while getting minimal exercise. I’ll probably also be a bit stir crazy. But so far, so very good. And I’m just taking it one day at a time. I have three friends due tomorrow and mother refuses to stay away. So I wonder what time the cleaner will get in tomorrow?

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Operation was today! – just to be flash!

posted by:
Joanne Wallen
and viewed 40 times

I am just showing off! Had operation at 10.30 am. It’s now 8.10pm. I was awake in recovery and asked nurses to tell my family I was ok. Have been chatting and joking with Martin, mum, Lou and Bev all afternoon and texting people. Talked to dad on phone, then Paul and Mary. Everyone including nurses been amazed.

They even got me up to use commode instead of bedpan! Now there’s real hospital talk!

Had nice cup of tea when I came back. Just eaten a three course meal. I kid you not! Chicken soup (naturally), lemon sole with roasted veg and new potatoes and raspberry sorbet. Bet you all want some!

Nursing staff have been fab. My visitors have been drinking red wine. I ask you?!

So far so very good. I’m sure I’m pretty tired really but expect a disrupted nights sleep. Still, with my track record today I might sleep like a log, at least until they wake me up to check my vital signs!!

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Operation tomorrow!!!

posted by:
Joanne Wallen
and viewed 30 times

I have enormous respect for the thousands of women who’ve had to go through what I’m about to go through. I’ve had four major operations since the age of 18 but I think this is the hardest to come to terms with (although hindsight does not allow me to remember exactly how I felt before all the others.

I went to see the breast care nurse who works with my surgeon, Mr Robert Carpenter, yesterday. This was probably a meeting we should have had at least a couple of weeks ago, but it wasn’t until I phoned her to ask a couple of questions that she suggested I came to see her.

I was hoping I would feel better after seeing her but frankly, although she was lovely and very knowledgeable, I felt traumatised. She showed me a load of pictures of women both before and after reconstruction. She also told me to think of reconstruction as an ongoing process rather than an event. I probably hadn’t realised that you don’t just wake up with a finished new breast. In my case they will be using a type of implant that is part silicone (fortunately not the dodgy industrial type!) and part saline solution. After the operation it will not be fully inflated (I know, sounds like some dodgy doll!!), and gets inflated over a few weeks by injecting the saline solution through a port which is inserted during the op.

Then there is the nipple, which is added later in a separate operation, so for me that will be three operations provided everything goes well with the implants! Then I found out that if they are going to give me any radiotherapy, I will have to wait 6 months to a year for the second reconstruction, for which they will take skin and muscle from my back.

I left with my head whirling with the full extent of what lay ahead. I went to a cafe for a cup of tea and phoned Martin, Lou and mum to tell them what I’d learned. Then I went to the gym for yoga. I can’t say I enjoyed the yoga as much as usual. It was hard to switch off. I’d arranged to do a telephone interview for work with a woman from the Financial Services Authority straight after yoga. The only place in the gym where I could get a phone signal was right by the front door, so I sat on the floor by the window waiting for the call. Discussing the Retail Distribution Review sat on the floor in my gym kit two days before my operation was a bit surreal but was a temporary distraction.

By the time I got home I was hungry and tired. I had some lunch and flopped in front of the TV, where I watched a previously recorded episode of The Indian Doctor, perhaps a strangely medical choice given the circumstances!

Sue and Tommy said they would come over and meet us for an early evening drink at the Grapes so we met them there at 6pm. Trish had also offered to come over and take us to dinner, but it’s all been a bit hectic this week so I suggested she come and meet us for a drink. Tony also turned up so we had a pleasant little interlude with a few of my many supportive friends.

On Monday I took mum to Westfield, Stratford for some shopping, her favourite pastime. I needed some nightwear for hospital, which gave mother an excuse, if ever she needed one, to get her purse out!

Coincidentally, Dena phoned me before we left for Westfield to make arrangements for our theatre visit the next night. Actually I’d forgotten we were going to see Cate Blanchett in Big and Small at the Barbican — more of that in a minute!

It turned out that Dena was also at Westfield so we agreed to meet for lunch. I’ve known Dena since we were about 13 so mum and Dena know each other well. There was no doubt some unspoken poignancy given that Dena had been so marvellous to me when I was going through Hodgkins at 18!

So Cate Blanchett and Big and Small. We’d read that she was fantastic but that the play was rather surreal. And that absolutely summed it up. In fact it was the weirdest play I’ve ever seen. Absolutely no point trying to understand what on earth it was all about. But Cate and the rest of the cast was so excellent that you just enjoyed watching it. The experience was somehow compelling and the cast got a standing ovation at the end. But if anyone starts to tell you what it’s about, they’re making it up!!

So here we are. Today I was going to have a last yoga session for a few weeks but decided instead to have lunch with Lou and Bev. I should also be having a reiki session this afternoon and I have to write up my story for work and pack a bag for my stay in the London Clinic.

But I can’t really distract myself any more. And I cannot pretend that this isn’t a big deal. Today I say farewell to a part of my body that has been a big part of who I am (in more ways than one!). I have never been someone to say its not fair, but yesterday I wanted to have a moment when I said it to myself. I know things could be far worse, but I have had more than my share and enough’s enough.

And that’s enough of self pity. In a couple of weeks I’ll be on the mend and getting on with life again. In the meantime I’ll just have to suffer people eating my grapes and watching my TV!! Bring it on!!

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Old school friends and a pre-op sail

posted by:
Joanne Wallen
and viewed 70 times

Had a lovely evening with my four old school friends on Wednesday. Diana came straight from her radiotherapy but looked great. It really is very strange that we two, who shared a room while at university in Sheffield 33 years ago, are both fighting breast cancer at the same time.

Singing in the Rain was lovely but slightly spoiled by the altitude. We had seats at the very back of the balcony, where the air is thinner and the stage is populated by performing ants. I exaggerate. The view wasn’t bad but it just felt so very far away from the action. As children our Christmas treat was to go the London Palladium to see the annual pantomime, which always featured a star of the day as opposed to a D-list celebrity. Hence we saw the likes of Cliff Richard, Englebert Humperdinck and Cilla Black and always from either the front or second row of the stalls. To this day I love being in the front stalls.

On Thursday I did two, 45 minute yoga classes back to back. Well, I’ll be out of action for a while so wanted to make the most of it while I could. I then had a meeting with an IFA contact before heading to the London Coliseum to see a Chinese dance show, Shen Yun. For some reason I allowed myself to be sold tickets for this show several weeks ago at the new shopping centre by St Paul’s, One New Change. I bought two tickets and then started to panic about who would come with me. I’d inadvertently booked the show for Gilly’s birthday, and she was off to France. Dena said it wasn’t her thing. So I asked Gilly’s friend Sally, and to my relief she said yes.

We had a very pleasant evening. The show had some wonderful dancing and brilliant choreography. It also had what to the Western ear sounded like a not very good soprano, baritone and tenor. But the worst bit was the labouring of the troupe’s political agenda. They are based in New York and want to keep traditional Chinese arts alive. Their point is that they are suppressed by the Communist regime in China. I don’t mind being made aware of that but they clumsily laboured the point with three very similar dance routines in which a group of innocent young people were practising Falun Gong, a Tai Chi type practice which the Chinese government has tried to stamp out. In each of the routines the baddie Communists appear in black outfits and beat up the innocent youths.

On Friday morning I had a quick check up with my oncologist and then an infusion of Herceptin. I’m now an experienced regular at the LOC (lLeaders in Oncology Care) and the lovely staff all say hello and come to chat. It’s not something you’d aspire to but given that you have to be there it makes things as pleasant as they could be. I suppose the whole session took about an hour and a half. I’ll be doing that every three weeks for about a year.

Then it was off to Westminster to meet yet another old school friend, Anne, for lunch. Anne and I can go months or even years without seeing each other but when we do get together it’s as if we’re just carrying on from yesterday’s conversation. I got the boat back and realised I needed a rest before my cousins came round in the evening (not, of course, that I was doing the cooking!!).

I actually got into bed and snoozed for an hour or so before joining Martin for a quick drink at The Grapes. Then it was home to receive my cousins Beverley and Adrienne and Bev’s husband Geoff for dinner. This was probably a first but Beverley and Adrienne have been very concerned about me and wanted to see me before I go in for the operation so we managed to find a date to suit everyone. Martin did his usual wizardry in the kitchen and a very pleasant evening was had by all.

Unfortunately, Martin had to get up at the crack of dawn on Saturday to go to Millwall football ground to get his taxi meter adjusted for the annual fare rise. This takes place between midnight on Friday and 8am Saturday or again on Sunday morning. So Martin nipped over there at 6am on Saturday, leaving me tucked up in bed. By 7am he was back in bed and we had a lazy morning with a dose of Saturday Kitchen before heading down to Ramsgate.

Matthew and Claire met us in Ramsgate with granddaughter Olivia and we had a pleasant hour or so sitting outside the yacht club in the sunshine and then went down to the boat for a little while with them. The evening was a casual affair. The idea was to have a couple of drinks in the yacht club with Stuart and Paul and Norma and then get a takeaway. Unfortunately the couple of drinks turned into an entire evening and we ended up sharing a chicken kebab at about 11.30pm!

Not a great idea when you have to get up before 8am for a yacht race! A quick shower, an egg sandwich and a cappuccino and I was ready to put on half a dozen layers and two hats to protect me from the twenty-four mile an hour northerly winds and the 8 degree temperature! We reefed the mainsail and headed out into the choppy seas. Not the way everyone would chose to spend their last weekend before a major operation, but it sure took my mind off things medical for a couple of hours!

We popped up to the yacht club for a quick coffee and post-race chat. I had a good send off by many well wishers. It will be a few weeks before I’m down there again but not too long I hope!

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